Childhood Cancer Data Initiative (CCDI): Integrating Longitudinal Clinical, Sociodemographic and Genomic Data into the NCCR
CCDI
Data Resource:  CCDI
Point of Contact:  
Katherine A. Janeway, MD, MMSc,  
Project

About This Dataset
Core Data Elements
Number of Cases
835
Case Sex
Female (366); Male (469)
Case Age At Diagnosis
0 to 4 years (318); 5 to 9 years (154); 10 to 14 years (186); 15 to 19 years (128); 20 to 24 years (23); 25 to 29 years (4); Pediatric and Young Adult (<40 years) (22)
Case Race
Asian (43); Black or African American (29); Native Hawaiian or other Pacific Islander (1); White (547); Not Reported (20); Unknown (195)
Case Ethnicity
Hispanic or Latino (42); Not Hispanic or Latino (478); Not Reported (46); Unknown (269)
Case Disease Diagnosis
Acinar Cell Carcinoma (1); Adenocarcinoma In Situ in Adenomatous Polyp (1); Adenocarcinoma, Metastatic, NOS (1); Adenocarcinoma, NOS (1); Adenosarcoma (1); Adrenal Cortical Carcinoma (3); Aggressive Fibromatosis (6); Alveolar Rhabdomyosarcoma (17); Alveolar Soft Part Sarcoma (1); Angiocentric Glioma (2); Angiomatoid Fibrous Histiocytoma (2); Astrocytoma, Anaplastic, NOS (20); Astrocytoma, NOS (65); Atypical Choroid Plexus Papilloma (3); Atypical Meningioma (6); Atypical Teratoid/Rhabdoid Tumor (8); Carcinoma, NOS (2); Central Primitive Neuroectodermal Tumor (9); Chondrosarcoma, NOS (1); Choriocarcinoma Combined with Other Germ Cell Elements (1); Choriocarcinoma, NOS (1); Choroid Plexus Carcinoma (2); Clear Cell Sarcoma of Kidney (1); Craniopharyngioma, Adamantinomatous (9); Dermatofibrosarcoma Protuberans, Fibrosarcomatous (2); Desmoplastic Small Round Cell Tumor (2); Diffuse Midline Glioma, H3 K27M-Mutant (4); Embryonal Carcinoma, NOS (1); Embryonal Rhabdomyosarcoma, NOS (17); Embryonal Sarcoma (1); Embryonal Tumor with Multilayered Rosettes with C19Mc Alteration (1); Ependymoma, Anaplastic (24); Ependymoma, NOS (11); Epithelioid Hemangioendothelioma, NOS (1); Epithelioid Sarcoma, NOS (2); Ewing Sarcoma (27); Ganglioglioma, Anaplastic (1); Ganglioglioma, NOS (14); Ganglioneuroblastoma (11); Gastrointestinal Stromal Tumor (5); Germinoma (9); Giant Cell Tumor of Bone, Malignant (2); Glioblastoma, NOS (26); Glioma, Malignant (11); Glomus Tumor, Malignant (1); Granulosa Cell Tumor, Juvenile (2); Hemangioblastoma (3); Hemangioendothelioma, NOS (4); Hepatoblastoma, NOS (13); Hepatocellular Carcinoma, Fibrolamellar (6); Hepatocellular Carcinoma, NOS (11); Infantile Fibrosarcoma (1); Leiomyosarcoma, NOS (2); Malignant Melanoma, NOS (7); Malignant Peripheral Nerve Sheath Tumor, NOS (15); Medulloblastoma, NOS (54); Meningioma, Malignant (3); Merkel Cell Carcinoma (1); Mesenchymal Chondrosarcoma (3); Mesoblastic Nephroma (1); Mixed Germ Cell Tumor (6); Mucoepidermoid Carcinoma (1); Myofibroblastic Tumor, NOS (4); Myxoid Liposarcoma (4); Myxopapillary Ependymoma (2); Neoplasm, Malignant (7); Neoplasm, Uncertain Whether Benign or Malignant (9); Nephroblastoma, NOS (54); Neuroblastoma, NOS (75); Neuroendocrine Carcinoma, NOS (1); Neuroendocrine Tumor, NOS (3); Olfactory Neuroblastoma (2); Oligodendroglioma, NOS (5); Osteosarcoma, NOS (37); Pancreatic Neuroendocrine Tumor, Nonfunctioning (1); Papillary Adenocarcinoma, NOS (3); Papillary Urothelial Carcinoma, Non-Invasive (1); Paraganglioma, NOS (6); Pheochromocytoma, NOS (2); Pilocytic Astrocytoma (42); Pilomyxoid Astrocytoma (4); Pineoblastoma (4); Pleomorphic Xanthoastrocytoma, NOS (4); Pleuropulmonary Blastoma (4); Proliferative Dermal Lesion in Congenital Nevus (1); Renal Cell Carcinoma, NOS (9); Retinoblastoma, NOS (7); Rhabdoid Tumor, NOS (5); Rhabdomyosarcoma, NOS (2); Sarcoma, NOS (5); Seminoma, NOS (3); Sertoli-Leydig Cell Tumor of Intermediate Differentiation, NOS (1); Sertoli-Leydig Cell Tumor, Poorly Differentiated, with Heterologous Elements (3); Small Cell Sarcoma (6); Solid Pseudopapillary Neoplasm of Pancreas (2); Spindle Cell Rhabdomyosarcoma (3); Spindle Cell Sarcoma (15); Squamous Cell Carcinoma In Situ, NOS (1); Synovial Sarcoma, NOS (8); Telangiectatic Osteosarcoma (1); Teratoma, Malignant, NOS (6); Teratoma, NOS (3); Thymoma, NOS (1); Transitional Cell Carcinoma, NOS (3); Yolk Sac Tumor, NOS (6)
Case Tumor Site
Abdomen, NOS (5); Adrenal gland, NOS (45); Aortic body and other paraganglia (1); Appendix (3); Autonomic nervous system, NOS (12); Bladder, NOS (4); Bone marrow (1); Bone of limb, NOS (37); Bone, NOS (5); Bones of skull and face and associated joints (3); Brain stem (22); Brain, NOS (98); Buttock, NOS (2); Cauda equina (1); Cerebellum, NOS (28); Cerebral meninges (1); Cerebrum (9); Cervix uteri (2); Chest wall, NOS (3); Colon, NOS (1); Connective, subcutaneous and other soft tissues of abdomen (8); Connective, subcutaneous and other soft tissues of head, face, and neck (21); Connective, subcutaneous and other soft tissues of lower limb and hip (21); Connective, subcutaneous and other soft tissues of pelvis (5); Connective, subcutaneous and other soft tissues of thorax (5); Connective, subcutaneous and other soft tissues of trunk, NOS (8); Connective, subcutaneous and other soft tissues of upper limb and shoulder (8); Connective, subcutaneous and other soft tissues, NOS (2); Corpus uteri (1); Cortex of adrenal gland (1); Craniopharyngeal duct (1); Duodenum (1); Foot, NOS (2); Frontal lobe (48); Hand, NOS (2); Head of pancreas (1); Head, face or neck, NOS (2); Heart (2); Intra-abdominal lymph nodes (1); Jejunum (1); Kidney, NOS (68); Liver (34); Long bones of lower limb and associated joints (9); Long bones of upper limb, scapula and associated joints (3); Lung, NOS (8); Mandible (4); Mediastinum, NOS (14); Meninges, NOS (1); Nasal cavity (1); Nasopharynx, NOS (1); Occipital lobe (10); Optic nerve (5); Orbit, NOS (1); Other ill-defined sites (1); Ovary (10); Overlapping lesion of brain (14); Overlapping lesion of brain and central nervous system (1); Overlapping lesion of connective, subcutaneous and other soft tissues (1); Pancreas, NOS (2); Parietal lobe (18); Parotid gland (2); Pelvic bones, sacrum, coccyx and associated joints (6); Peripheral nerves and autonomic nervous system of lower limb and hip (2); Peripheral nerves and autonomic nervous system of pelvis (1); Peritoneum, NOS (1); Pineal gland (8); Pituitary gland (2); Pleura, NOS (2); Retina (7); Retroperitoneum (25); Rib, sternum, clavicle and associated joints (2); Scrotum, NOS (3); Skin of scalp and neck (4); Skin of trunk (1); Skin, NOS (6); Spinal cord (15); Stomach, NOS (5); Temporal lobe (50); Testis, NOS (12); Thymus (1); Thyroid gland (3); Tongue, NOS (2); Trachea (1); Upper lobe, lung (2); Ureter (1); Vagina, NOS (1); Ventricle, NOS (26); Vertebral column (5); Vulva, NOS (3); Unknown (6)
Number of Samples
835
Sample Is Normal
No (835)
Additional Data Elements
DBGAP STUDY IDENTIFIER
Charts
Male (469); Female (366)
469Male