Pediatric Cancer Data Commons
Point of Contact: Sam Volchenboum, svolchen@peds.bsd.uchicago.edu
Data Repository
The Pediatric Cancer Data Commons (PCDC) focuses on collecting, standardizing, and harmonizing disparate sources and types of pediatric cancer clinical research data, including clinical, genomic, and imaging data, from consortia, research groups, and institutions around the world.
Resource Description
Resource Type
Data Repository
Specialization
Pediatric
Data Update Date
08/30/2024
Data Content Type
Clinical, Genomics/Omics
Resource Tools
Visualization Tools
YES
Analytic Tools
YES
Case Disease Diagnosis
Ganglioneuroblastoma, Intermixed (Schwannian Stroma-Rich) (1,105); Ganglioneuroblastoma, Nodular (Composite) (1,090); Ganglioneuroma (Schwannian Stroma-Dominant), Maturing Subtype (295); Neuroblastoma (Schwannian Stroma-Poor) (15,784); Unknown (6,954)
Number of Cases
25,404
Case Sex
Female (10,171); Male (11,915); Unknown (3,318)
Case Age At Diagnosis
0 to 4 years (7,930); 5 to 9 years (7,877); 10 to 14 years (5,130); 15 to 19 years (1,989); 20 to 24 years (505); 25 to 29 years (121); 30 to 34 years (43); 30 to 39 years (6); Pediatric and Young Adult (<40 years) (1,803)
Published In
Program
Case Disease Diagnosis
Adult Fibrosarcoma (62); Alveolar rhabdomyosarcoma (2,106); Alveolar soft-part sarcoma (98); Angiomatoid fibrous histiocytoma (40); Angiosarcoma of Soft Tissue (27); Botryoid rhabdomyosarcoma (486); Clear cell sarcoma of soft tissue (52); Dermatofibrosarcoma Protuberans (106); Desmoid-type Fibromatosis (236); Desmoplastic small round cell tumour (68) ...
Number of Cases
10,625
Case Sex
Female (4,348); Male (5,911); Unknown (6)
Case Age At Diagnosis
0 to 4 years (1,195); 5 to 9 years (2,035); 10 to 14 years (2,736); 15 to 19 years (2,680); 20 to 24 years (1,188); 25 to 29 years (372); 30 to 34 years (55); 35 to 39 years (4)
Published In
Program
Case Disease Diagnosis
Acute Megakaryoblastic Leukemia (53); Acute Monoblastic/Monocytic Leukemia (138); Acute Myelomonocytic Leukemia (151); Acute Panmyelosis with Myelofibrosis (1); AML with inv(16)(p13.1q22) or t(16;16)(p13.1;q22); CBFB-MYH11 (159); AML with Maturation (136); AML with Minimal Differentiation (39); AML with T(8;21)(Q22;Q22.1); RunX1-RunX1T1 (169); AML with t(9;11)(p21.3;q23.3); KMT2A-MLLT3 (245); AML without Maturation (131) ...
Number of Cases
1,028
Case Sex
Female (518); Male (510)
Case Age At Diagnosis
0 to 4 years (339); 5 to 9 years (183); 10 to 14 years (275); 15 to 19 years (213); 20 to 24 years (13); 25 to 29 years (5)
Program
Case Disease Diagnosis
Choriocarcinoma (68); Embryonal Carcinoma (521); Gonadoblastoma (3); Immature Teratoma (60); Mature Teratoma (334); Mixed Germ Cell Tumor (55); Necrotic Tumor (5); Seminoma (507); Seminoma/Dysgerminoma/Germinoma30 (26); Teratoma, NOS (3) ...
Number of Cases
1,044
Case Sex
Female (88); Male (956)
Case Age At Diagnosis
0 to 4 years (53); 5 to 9 years (13); 10 to 14 years (58); 15 to 19 years (96); 20 to 24 years (201); 25 to 29 years (234); 30 to 34 years (205); 35 to 39 years (184)
Published In
Program
Case Disease Diagnosis
Hodgkin Lymphoma, Classical, NOS (359); Hodgkin Lymphoma, Lymphocyte Depletion, NOS (187); Hodgkin Lymphoma, Mixed Cellularity, NOS (155); Hodgkin Lymphoma, Nodular Lymphocyte Predominance (280); Hodgkin Lymphoma, Nodular Sclerosis, NOS (1,384); Hodgkin Lymphoma, NOS (72)
Number of Cases
2,437
Case Sex
Female (1,098); Male (1,339)
Case Age At Diagnosis
Pediatric and Young Adult (<40 years) (2,437)
Program