The goal of the Gabriella Miller Kids First Pediatric Research Program (Kids First) is to help researchers uncover new insights into the biology of childhood cancer and structural birth defects, including the discovery of shared genetic pathways between these disorders.
Resource Description
Resource Type
Data Repository
Specialization
Pediatric
Data Update Date
12/30/2024
Data Content Type
Clinical, Genomics/Omics, Imaging
Resource Tools
Visualization Tools
YES
Analytic Tools
YES
Case Disease Diagnosis
Adamantinomatous Craniopharyngioma (8); Astrocytoma, IDH-Mutant (5); Atypical Choroid Plexus Papilloma (3); Atypical Meningioma (2); Atypical Teratoid/Rhabdoid Tumor (135); Central Nervous System Embryonal Tumor (110); Central Nervous System Germ Cell Tumor (49); Central Nervous System Germinoma (73); Central Nervous System Mature T-Cell and NK-Cell Non-Hodgkin Lymphoma (1); Central Nervous System Melanocytic Neoplasm (1) ...
Number of Cases
7,706
Case Sex
Female (3,708); Male (3,903); Unknown (95)
Case Age At Diagnosis
0 to 4 years (1,747); 5 to 9 years (1,689); 10 to 14 years (1,608); 15 to 19 years (1,063); 20 to 24 years (252); 25 to 29 years (80); 30 to 34 years (30); 35 to 39 years (20); Pediatric and Young Adult (<40 years) (1,217)
Project
Case Disease Diagnosis
Atrial Heart Septal Defect (81); Atrioventricular Septal Defect (196); Complete Atrioventricular Canal (197); Congenital Heart Disease (26); Congenital Heart Malformation (202); Down Syndrome (1,337); Partial Atrioventricular Canal (47); Patent Ductus Arteriosus (202); Patent Foramen Ovale (227); Precursor B-Cell Acute Lymphoblastic Leukemia (530) ...
Number of Cases
2,423
Case Sex
Female (1,165); Male (1,257); Unknown (1)
Case Age At Diagnosis
0 to 4 years (1,684); 5 to 9 years (32); 10 to 14 years (29); 15 to 19 years (8); 20 to 24 years (4); 25 to 29 years (1); Pediatric and Young Adult (<40 years) (665)
Published In
Project
Case Disease Diagnosis
Maffucci Syndrome (19); Ollier Disease (56)
Number of Cases
211
Case Sex
Female (113); Male (98)
Case Age At Diagnosis
0 to 4 years (27); 5 to 9 years (13); 10 to 14 years (4); 15 to 19 years (1); 20 to 24 years (1); Pediatric and Young Adult (<40 years) (165)
Project
Case Disease Diagnosis
Ewing Sarcoma (563); Peripheral Primitive Neuroectodermal Tumor (1); Primitive Neuroectodermal Tumor (2); Rhabdomyosarcoma (1); Sarcoma (1); Soft Tissue Sarcoma (1); Not Reported (718)
Number of Cases
1,287
Case Sex
Female (615); Male (672)
Case Age At Diagnosis
0 to 4 years (45); 5 to 9 years (110); 10 to 14 years (206); 15 to 19 years (161); 20 to 24 years (26); 25 to 29 years (6); 30 to 34 years (1); 35 to 39 years (1); Pediatric and Young Adult (<40 years) (731)
Project
Case Disease Diagnosis
Acute Lymphoblastic Leukemia (23); B-Cell Acute Lymphoblastic Leukemia (1); Breast Cancer (2); Hodgkins Lymphoma (28); Hodgkins Lymphoma, Lymphocytic Depletion (4); Kidney Cancer (2); Lung Cancer (3); Myelofibrosis (2); Non-Hodgkin Lymphoma (9); Other (109) ...
Number of Cases
185
Case Sex
Female (100); Male (85)
Case Age At Diagnosis
0 to 4 years (6); 5 to 9 years (4); 10 to 14 years (2); 15 to 19 years (13); 25 to 29 years (3); 30 to 34 years (5); 35 to 39 years (4); Pediatric and Young Adult (<40 years) (148)
Project
Case Disease Diagnosis
Benign Neoplasm of Skin (146); Brain Cancer (104); Brain Neoplasm (93); Cancer of Cerebellum (71); Connective and Soft Tissue Neoplasm (61); Cryptorchidism (64); Lymphoid Leukemia (63); Melanocytic Nevus (82); Neurofibromatosis (70); Neurofibromatosis Type 1 (103) ...
Number of Cases
1,777
Case Sex
Female (868); Male (909)
Case Age At Diagnosis
0 to 4 years (799); 5 to 9 years (327); 10 to 14 years (247); 15 to 19 years (56); Pediatric and Young Adult (<40 years) (348)
Project
Case Disease Diagnosis
Intracranial Germ Cell Tumors (356)
Number of Cases
356
Case Sex
Female (159); Male (197)
Case Age At Diagnosis
0 to 4 years (10); 5 to 9 years (22); 10 to 14 years (50); 15 to 19 years (39); Pediatric and Young Adult (<40 years) (235)
Project
Case Disease Diagnosis
Acute Myeloid Leukemia (60)
Number of Cases
60
Case Sex
Female (19); Male (19); Not Reported (22)
Case Age At Diagnosis
0 to 4 years (11); 5 to 9 years (11); 10 to 14 years (12); 15 to 19 years (24); 20 to 24 years (2)
Published In
Project
Case Disease Diagnosis
Ganglioneuroma (4); Intermixed Schwannian Stroma-Rich Ganglioneuroblastoma (23); Neuroblastoma (451); Nodular Ganglioneuroblastoma (31); Other (1,172)
Number of Cases
1,681
Case Sex
Female (860); Male (821)
Case Age At Diagnosis
0 to 4 years (498); 5 to 9 years (11); Pediatric and Young Adult (<40 years) (1,172)
Published In
Project
Case Disease Diagnosis
Anaplastic Ependymoma (4); Ewing Sarcoma (12); Glioblastoma (5); Hepatoblastoma (7); Medulloblastoma (14); Mixed Germ Cell Tumor (7); Neoplasms (344); Neuroblastoma (26); Osteosarcoma (14); Other (245) ...
Number of Cases
718
Case Sex
Female (354); Male (364)
Case Age At Diagnosis
0 to 4 years (90); 5 to 9 years (67); 10 to 14 years (61); 15 to 19 years (29); Pediatric and Young Adult (<40 years) (471)
Project
Case Disease Diagnosis
Osteosarcoma (84)
Number of Cases
84
Case Sex
Female (33); Male (51)
Case Age At Diagnosis
Pediatric and Young Adult (<40 years) (84)
Project
Case Disease Diagnosis
T-Cell Acute Lymphoblastic Leukemia (1,358)
Number of Cases
1,358
Case Sex
Female (356); Male (1,002)
Case Age At Diagnosis
0 to 4 years (268); 5 to 9 years (471); 10 to 14 years (357); 15 to 19 years (181); Pediatric and Young Adult (<40 years) (81)
Project
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