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Central Brain Tumor Registry of the United States
CBTRUS
4
  • https://cbtrus.org/
    • Point of Contact:  Jill S. Barnholtz-Sloan, Ph.D.,  
  • jill.barnholtz-sloan@nih.gov
    • Registry

    The Central Brain Tumor Registry of the United States (CBTRUS) is a not-for-profit research corporation, recognized by the international research community as the premier resource for annual histology-specific statistical information for all primary brain and other CNS tumors in the United States. The CBTRUS analytic database has been developed by compiling data from central (state) cancer registries, the District of Columbia, and Puerto Rico that include information on both malignant and non-malignant primary brain and other CNS tumors.
    Resource Description
    Resource Type
    Registry
    Specialization
    Mixed Adult and Pediatric

    Data Update Date
    02/19/2025
    Data Content Type

    Clinical
    Resource Tools
    Visualization Tools
    Analytic Tools
    Data Access


    datasets
    DATASET SUMMARIES (4)
    CBTRUS Fact Sheet 2021
    Case Disease Diagnosis
    Anaplastic astrocytoma (7,175); Anaplastic oligodendroglioma (1,839); Choroid Plexus Tumors (847); Craniopharyngioma (3,139); Diffuse astrocytoma (7,729); Embryonal Tumors (3,252); Ependymal Tumors (6,926); Germ Cell Tumors (1,252); Glioblastoma (61,699); Glioma malignant, NOS (8,471) ...

    Number of Cases
    431,773

    Case Sex
    Female (252,271); Male (179,502)

    Case Age At Diagnosis
    0 to 4 years (6,106); 5 to 9 years (5,628); 10 to 14 years (6,074); 15 to 19 years (7,689); 20 to 39 years (54,869); Greater than 39 years (351,407)

    Published In
  • https://doi.org/10.1093/neuonc/noab200
    • Collection
    CBTRUS Fact Sheet 2022
    Case Disease Diagnosis
    Anaplastic astrocytoma (7,046); Anaplastic oligodendroglioma (1,862); Choroid Plexus Tumors (827); Craniopharyngioma (3,133); Diffuse astrocytoma (7,634); Embryonal Tumors (3,170); Ependymal Tumors (6,911); Germ Cell Tumors (1,280); Glioblastoma (63,258); Glioma malignant, NOS (8,753) ...

    Number of Cases
    445,792

    Case Sex
    Female (261,624); Male (184,168)

    Case Age At Diagnosis
    0 to 14 years (17,560); 15 to 39 years (63,812); Greater than 39 years (364,420)

    Published In
  • https://doi.org/10.1093/neuonc/noac202
    • Collection
    CBTRUS Fact Sheet 2023
    Case Disease Diagnosis
    Anaplastic Astrocytoma (6,729); Anaplastic Oligodendroglioma (1,838); Choroid Plexus Tumors (808); Craniopharyngioma (3,084); Diffuse Astrocytoma (7,436); Embryonal Tumors (3,057); Ependymal Tumors (6,858); Germ Cell Tumors (1,255); Glioblastoma (64,548); Glioma Malignant, NOS (8,877) ...

    Number of Cases
    453,623

    Case Sex
    Female (266,822); Male (186,801)

    Case Age At Diagnosis
    0 to 14 years (17,136); 15 to 39 years (64,238); Greater than 39 years (372,249)

    Published In
  • https://doi.org/10.1093/neuonc/noad149
    • Collection
    CBTRUS Fact Sheet 2024
    Case Disease Diagnosis
    Anaplastic Astrocytoma (6,057); Anaplastic Oligodendroglioma (1,740); Choroid Plexus Tumors (805); Craniopharyngioma (3,096); Diffuse Astrocytoma (7,535); Embryonal Tumors (3,005); Ependymal Tumors (6,834); Germ Cell Tumors (1,214); Glioblastoma (65,365); Glioma Malignant, NOS (9,102) ...

    Number of Cases
    467,894

    Case Sex
    Female (276,656); Male (191,238)

    Case Age At Diagnosis
    0 to 14 years (16,905); 15 to 39 years (65,399); Greater than 39 years (385,590)

    Published In
  • https://doi.org/10.1093/neuonc/noae145
    • Collection