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Hodgkin Lymphoma Data Collaboration (NODAL)
PCDC
Data Resource:  PCDC
Point of Contact:  
Suzi Birz,  
Program

About This Dataset
Researchers have created this consortium with the goal of establishing a database containing information from clinical trials to enable scientific investigations, including to harmonize staging and response assessment, improve prognostic factors, enable assessment of short and long term toxicity, and study rare subtypes. NODAL will launch a radiation and imaging work group to identify the data available to aid in studies and a Young Adults work group to serve as liaison to the adult trials.
Core Data Elements
Number of Cases
2,437
Case Sex
Female (1,098); Male (1,339)
Case Age At Diagnosis
Pediatric and Young Adult (<40 years) (2,437)
Case Race
American Indian or Alaska Native (5); Asian (69); Black or African American (290); More Than One Race (12); Native Hawaiian or Other Pacific Islander (7); Other (12); White (1,893); Unknown (149)
Case Ethnicity
Hispanic or Latino (286); Not Hispanic or Latino (2,077); Unknown (74)
Case Disease Diagnosis
Hodgkin Lymphoma, Classical, NOS (359); Hodgkin Lymphoma, Lymphocyte Depletion, NOS (187); Hodgkin Lymphoma, Mixed Cellularity, NOS (155); Hodgkin Lymphoma, Nodular Lymphocyte Predominance (280); Hodgkin Lymphoma, Nodular Sclerosis, NOS (1,384); Hodgkin Lymphoma, NOS (72)
Case Tumor Site
Lymphatic System (2,437)
Additional Data Elements
DATA REPOSITORY
Charts
Male (1,339); Female (1,098)
1,339Male