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Hodgkin Lymphoma Data Collaboration (NODAL)
PCDC
Data Resource:  PCDC
Point of Contact:  
Suzi Birz,  
Program

About This Dataset
Researchers have created this consortium with the goal of establishing a database containing information from clinical trials to enable scientific investigations, including to harmonize staging and response assessment, improve prognostic factors, enable assessment of short and long term toxicity, and study rare subtypes. NODAL will launch a radiation and imaging work group to identify the data available to aid in studies and a Young Adults work group to serve as liaison to the adult trials.
Core Data Elements
Number of Cases
2,137
Case Sex
Female (989); Male (1,184)
Case Age At Diagnosis
0 to 4 years (48); 5 to 9 years (216); 10 to 14 years (787); 15 to 19 years (1,040); 20 to 24 years (46)
Case Race
American Indian or Alaska Native (6); Asian (60); Black or African American (235); Native Hawaiian or Other Pacific Islander (7); White (1,692); Unknown (173)
Case Ethnicity
Hispanic or Latino (313); Not Hispanic or Latino (1,786); Unknown (74)
Case Disease Diagnosis
Hodgkin Lymphoma, Lymphocyte Depletion, NOS (4); Hodgkin Lymphoma, Lymphocyte-Rich (23); Hodgkin Lymphoma, Mixed Cellularity, NOS (183); Hodgkin Lymphoma, Nodular Lymphocyte Predominance (280); Hodgkin Lymphoma, Nodular Sclerosis, NOS (1,578); Hodgkin Lymphoma, NOS (105)
Case Tumor Site
Axillary Nodes (74); Bone (3); Cervical Nodes (400); Epitrochlear Nodes (3); Hilar Nodes (41); Iliac (17); Infraclavicular Nodes (18); Inguinal or Femoral Nodes (43); Liver (1); Lung (10); Mediastinum (206); Mesenteric Nodes (4); Paraaortic Lymph Nodes (6); Pectoral Nodes (3); Preauricular Nodes (11); Spleen (4); Splenic Hilar Nodes (1); Supraclavicular Nodes (294); Waldeyer's Ring (10)
Additional Data Elements
DATA REPOSITORY
Published In
https://commons.cri.uchicago.edu/publications/#1712159443243-7f047967-dbf2
Charts
Male (1,184); Female (989)
1,184Male